Cystic hygroma questions, answered

A cystic hygroma is the most common subtype of lymphangioma, a fluid-filled malformation of the lymphatic system. It typically presents at birth or in early infancy, most often on the head and neck. Lilly, the foundation's namesake, was born with this condition.

They can be. Enlargement of cystic hygromas is common, and in infants they pose an airway obstruction risk. To avoid the high mortality associated with this condition, they must be promptly diagnosed and treated. If your child has been diagnosed, seek evaluation from a specialist experienced in vascular malformations as soon as possible.

Treatment depends on the size and location. Options may include sclerotherapy, medication, or surgical excision by a specialist experienced in vascular anomalies. Our partner, the Vascular Birthmark Institute, is a world-leading team in the diagnosis and treatment of these conditions. Always consult a qualified physician about your child's specific case; nothing on this site is medical advice.

Unfortunately, health insurance coverage is often not adequate, and most families struggle to get the proper treatment necessary for their child. Families frequently face these surgeries out of pocket, repeatedly. The Lillian Bay Foundation exists to fill that void.

Through a thorough intake process, we prioritize cases based on medical urgency and financial need. We work closely with families and medical providers to review medical information, identify the right specialists, and manage all travel and lodging arrangements. Our support continues after surgery, through recovery and follow-up care.

Contact the foundation through the form on this site. Many families are also referred to us directly by their surgeon's office. One family told us their lives "changed overnight with one application."